Familial Dysautonomia (FD), also known as Riley-Day syndrome, is a rare inherited disorder that significantly impacts the autonomic nervous system, sensory nervous system, and peripheral nervous system. Individuals living with familial dysautonomia face daily challenges due to the wide-ranging complications of this condition, requiring specialized care and ongoing research to improve their quality of life.
Image: Familial Dysautonomia Foundation logo, representing their commitment to FD research and treatment.
The Familial Dysautonomia Foundation stands as a leading organization dedicated to enhancing the lives of those affected by this complex disorder. Through funding groundbreaking research, promoting optimal medical care, and providing essential social services, public education, and advocacy, the foundation strives to make a tangible difference for individuals and families navigating the complexities of familial dysautonomia.
Striving for a Better Life for People Living with Familial Dysautonomia
The core mission of the Familial Dysautonomia Foundation is to improve the lives of individuals affected by FD. This is achieved through a multi-faceted approach that encompasses:
- Funding Groundbreaking Scientific Research: The foundation prioritizes research initiatives aimed at understanding the underlying mechanisms of familial dysautonomia, developing effective treatments, and ultimately seeking a cure. This commitment to scientific advancement is crucial for long-term progress in managing and overcoming FD.
- Advancing Medical Care: Ensuring access to high-quality medical care is paramount for individuals with FD. The foundation supports initiatives that improve diagnostic capabilities, treatment protocols, and specialized medical services tailored to the unique needs of FD patients.
- Providing Social Services: Living with a chronic and complex condition like familial dysautonomia presents numerous social and emotional challenges. The foundation offers vital social services to support individuals and families, fostering a sense of community and providing resources to navigate daily life.
- Public Education and Awareness: Raising awareness about familial dysautonomia is essential for early diagnosis, informed care, and broader societal understanding. The foundation actively engages in public education campaigns to disseminate accurate information about FD and its impact.
- Advocacy for the FD Community: The Familial Dysautonomia Foundation serves as a strong advocate for the rights and needs of the FD community. By engaging with policymakers and healthcare systems, the foundation works to ensure that individuals with FD receive the support and recognition they deserve.
Learn More Link to the “About Us” page for more information about the Familial Dysautonomia Foundation.
Our Impact: Leading the Way in FD Treatment and Research
For over seven decades, the Familial Dysautonomia Foundation has been at the forefront of efforts to combat FD, achieving significant milestones in treatment and research. These accomplishments highlight the foundation’s unwavering dedication and the tangible progress made in the fight against familial dysautonomia.
Key accomplishments of the Familial Dysautonomia Foundation include:
- Pioneering research into the genetic basis of familial dysautonomia.
- Establishing specialized centers for the diagnosis and treatment of FD.
- Developing and disseminating clinical care guidelines for managing FD.
- Facilitating collaborations among researchers and clinicians worldwide.
- Providing crucial support services that enhance the quality of life for individuals with FD and their families.
Image: “Donate” icon, encouraging viewers to support the Familial Dysautonomia Foundation through donations.
Our History Link to the “History” page for a detailed overview of the Familial Dysautonomia Foundation’s journey and achievements.
A Voice for Those Affected By Familial Dysautonomia
Imagine a life where the fundamental functions your body performs automatically – from swallowing and breathing to regulating emotions and pain – are disrupted. This is the daily reality for individuals living with familial dysautonomia. The Familial Dysautonomia Foundation is committed to amplifying the voices of those affected by FD, helping the broader public understand the profound impact of this disorder and the urgent need for continued research and support.
Image: “Latest News” icon, inviting users to stay informed about the latest updates in FD research and care.
Discover What Living with Familial Dysautonomia is Really Like
By sharing stories, providing educational resources, and fostering open communication, the Familial Dysautonomia Foundation aims to bridge the gap between understanding the medical complexities of FD and recognizing the human experiences of those living with this condition. Through increased awareness and empathy, the foundation hopes to build a more supportive and inclusive world for individuals and families affected by familial dysautonomia.
Image: “Equipment Rentals” icon, promoting the foundation’s equipment rental program to assist FD patients.
Get Involved and Support the Familial Dysautonomia Foundation
There are numerous ways to contribute to the Familial Dysautonomia Foundation’s mission and make a positive impact on the lives of those affected by FD:
- Donate: Financial contributions are vital for supporting research initiatives, medical programs, and social services. Your donation, no matter the size, can make a significant difference. Donate
- Stay Informed: Keep up-to-date with the latest news and advancements in FD research and care by regularly checking the foundation’s website and subscribing to their newsletter. Latest News
- Explore Equipment Rentals: Learn about the foundation’s equipment rental program, which provides valuable resources to individuals with FD. Equipment Rentals
- Attend Upcoming Events: Connect with the FD community, learn more about the foundation’s work, and show your support by participating in upcoming events. Upcoming Events
- Join the Mailing List: Receive regular updates on FD research, upcoming events, and community news directly to your inbox by joining the foundation’s mailing list. Sign Up Today!
Image: “Upcoming Events” icon, encouraging users to find out about and participate in upcoming events related to FD.
By working together, we can support the Familial Dysautonomia Foundation in their ongoing efforts to improve the lives of individuals living with familial dysautonomia and move closer to a future where FD is effectively treated and ultimately overcome.
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